Wed Sep 18, 11:30 AM - Wed Sep 18, 4:00 PM
8120 Wisconsin Avenue, Bethesda, MD 20814

Community: Bethesda

Description

Working Together to Transform Data Sharing

Event Details

11:30 – 12:00 pm

Registration

12:00-12:30 pm

Welcome remarks

Vivli Update for 2019 and Vision for 2020, Rebecca Li, Vivli

Working lunch

12:30-1:15 pm

Invited Speaker: Informed consent and secondary use of data for data sharing – David Peloquin, Ropes & Gray

1:15-2:00 pm

Panel Discussion: Challenges of sharing small datasets and rare disease data – MODERATER: Rebecca Li

Patrick Cullinan, Takeda
Edith Eby, Pfizer
Robyn Himick, Amyloidosis Research Consortium
David Peloquin, Ropes & Gray
Susan Ward, CureDuchenne

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